Smith-Magenis syndrome

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Smith-Magenis syndrome

ORPHA:819Malformation syndrome

Also called 17p11.2 microdeletion syndrome

What it is

A rare, genetic, neurodevelopmental disorder characterized by cognitive impairment of variable severity, behavioral abnormalities, and sleep disturbance. Patients present with distinctive physical features and a wide range of malformations (e.g. cardiac, renal).

Key facts

Prevalence
1-9 / 100 000 (Europe)
Age of onset
Adolescent, Adult, Childhood, Infancy, Neonatal
Inheritance
Autosomal dominant
Classified as
Malformation syndrome

Prevalence figures describe populations, not individuals, and are often estimates from a single study. Where the figure is an incidence or a birth prevalence, it says so.

Signs and symptoms

Common30–79%

46

These ranges are how often a sign appears across everyone diagnosed, not a prediction for one person — most people have some of these and not others. Orphanet also records findings that are specifically absent in this disease; those are in the data but not listed here.

Gene

RAI1Disease-causing germline mutation(s)

ICD-10 codes

Q93.5filed under a broader ICD-10 category — shared with 122 other rare diseases

ICD-10 has no distinct code for most rare diseases, so many are filed under the nearest available one. A shared code identifies the group, not this disease — the ORPHAcode above is what identifies it.

Related health topics

Reached through the ICD-10 categories this disease is filed under, so these describe the broader group rather than this disease specifically.

Cross-references

GARD 8197MEDDRA 10081680MESH D058496MONDO 0008434OMIM 182290UMLS C0795864

Orphadata Science: Free access data from Orphanet. © INSERM 1999. Data version 2026-06-23. Available under CC BY 4.0. This is a reference, not medical advice.

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