Cleft lip/palate-ectodermal dysplasia…

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Cleft lip/palate-ectodermal dysplasia syndrome

ORPHA:3253Malformation syndrome

Also called CLPED1 · Cleft lip/palate-syndactyly-pili torti syndrome · Syndactyly-ectodermal dysplasia-cleft/lip palate · Zlotogora-Ogur syndrome

What it is

Zlotogora-Ogur syndrome is an ectodermal dysplasia syndrome characterized by hair, skin and teeth anomalies, facial dysmophism with cleft lip and palate, cutaneous syndactyly and, in some cases, intellectual disability.

Key facts

Age of onset
Infancy, Neonatal
Inheritance
Autosomal recessive
Classified as
Malformation syndrome

Recorded for the broader condition

Prevalence
6-9 / 10 000Ectodermal dysplasia syndrome

Orphanet records these for the broader condition rather than for this specific form. They are a starting point, not a figure for this subtype — subtypes often differ, and some are defined by being rarer than the condition they sit under.

Signs and symptoms

These ranges are how often a sign appears across everyone diagnosed, not a prediction for one person — most people have some of these and not others. Orphanet also records findings that are specifically absent in this disease; those are in the data but not listed here.

Gene

NECTIN1Disease-causing germline mutation(s)

ICD-10 codes

Q82.4filed under a broader ICD-10 category — shared with 43 other rare diseases

ICD-10 has no distinct code for most rare diseases, so many are filed under the nearest available one. A shared code identifies the group, not this disease — the ORPHAcode above is what identifies it.

Related health topics

Reached through the ICD-10 categories this disease is filed under, so these describe the broader group rather than this disease specifically.

Cross-references

GARD 375MESH C536726MONDO 0009151OMIM 225060UMLS C2931488

Orphadata Science: Free access data from Orphanet. © INSERM 1999. Data version 2026-06-23. Available under CC BY 4.0. This is a reference, not medical advice.

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