Joubert syndrome

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Joubert syndrome

ORPHA:140874Malformation syndrome

Also called JS

What it is

Joubert syndrome (JS) and related disorders (JSRD) are a group of developmental delay/multiple congenital anomaly syndromes in which the mandatory feature is the ``molar tooth sign'' (MTS), a complex midbrain-hindbrain malformation recognizable on brain imaging. The MTS is characterized by cerebellar vermis hypodysplasia, thickening and malorientation of the superior cerebellar peduncles and abnormally deep interpeduncular fossa.

Key facts

Prevalence
>1 / 1000 (North America)
Age of onset
Infancy, Neonatal
Inheritance
Autosomal recessive, X-linked recessive
Classified as
Malformation syndrome

Prevalence figures describe populations, not individuals, and are often estimates from a single study. Where the figure is an incidence or a birth prevalence, it says so.

Genes reported in subtypes

AHI1ARL13BARL3ARMC9B9D1B9D2CBY1CC2D2ACEP104CEP120CEP290CEP41CPLANE1CSPP1FAM149B1HYLS1IFT74INPP5EKATNIPKIAA0586KIAA0753KIF7MKS1NPHP1OFD1PDE6DPIBF1RPGRIP1LSUFUTCTN1TCTN2TCTN3TMEM138TMEM216TMEM218TMEM231TMEM237TMEM67TOGARAM1TOPORSZNF423

Orphanet records these genes on 7 more specific entries under this disorder, not on this entry itself:

A well-studied disease is usually split into subtypes, and the gene is curated on whichever one the evidence belongs to. Open a subtype to see which gene goes with it.

Cross-references

GARD 19931MONDO 0015369MONDO 15369UMLS C5679612

Orphadata Science: Free access data from Orphanet. © INSERM 1999. Data version 2026-06-23. Available under CC BY 4.0. This is a reference, not medical advice.

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