Familial bicuspid aortic valve

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Familial bicuspid aortic valve

ORPHA:402075Morphological anomaly

Also called Familial BAV

What it is

Familial bicuspid aortic valve is a rare, genetic, aortic malformation defined as a presence of abnormal two-leaflet aortic valve in at least 2 first-degree relatives. It is frequently asymptomatic or may be associated with progressive aortic valve disease (aortic regurgitation and/or aortic stenosis, typically due to valve calcification) and a concomitant aortopathy (i.e. aortic dilation, aortic aneurysm and/or dissection).

Key facts

Age of onset
Infancy, Neonatal
Inheritance
Autosomal dominant
Classified as
Morphological anomaly

Signs and symptoms

These ranges are how often a sign appears across everyone diagnosed, not a prediction for one person — most people have some of these and not others. Orphanet also records findings that are specifically absent in this disease; those are in the data but not listed here.

Genes

GATA5Disease-causing germline mutation(s) (loss of function)
NKX2-5Disease-causing germline mutation(s) (loss of function)
NOTCH1Disease-causing germline mutation(s)
ROBO4Disease-causing germline mutation(s)
SMAD6Disease-causing germline mutation(s)

ICD-10 codes

Q23.1filed under a broader ICD-10 category

Cross-references

MONDO 0007194OMIM 109730OMIM 614823OMIM 617912OMIM 618496UMLS C4749284

Orphadata Science: Free access data from Orphanet. © INSERM 1999. Data version 2026-06-23. Available under CC BY 4.0. This is a reference, not medical advice.

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