Septopreoptic holoprosencephaly

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Septopreoptic holoprosencephaly

ORPHA:280195Clinical subtype

Also called Septopreoptic HPE

What it is

A rare subtype of holoprosencephaly characterized by midline fusion limited to the septal and/or preoptic regions of the telencephalon without a significant frontal neocortical fusion. Midline craniofacial malformations are generally mild and include solitary median maxillary incisor and pyriform sinus stenosis. Other reported manifestations include language delay, learning difficulties, and behavioral disorders. Imaging reveals abnormal fornix, absent or hypoplasic anterior corpus callosum, and unpaired anterior cerebral artery.

Key facts

Age of onset
Infancy, Neonatal
Inheritance
Multigenic/multifactorial
Classified as
Clinical subtype

Recorded for the broader condition

Prevalence
1-5 / 10 000 (at birth, Europe)Holoprosencephaly

Orphanet records these for the broader condition rather than for this specific form. They are a starting point, not a figure for this subtype — subtypes often differ, and some are defined by being rarer than the condition they sit under.

Signs and symptoms

These ranges are how often a sign appears across everyone diagnosed, not a prediction for one person — most people have some of these and not others. Orphanet also records findings that are specifically absent in this disease; those are in the data but not listed here.

Genes

CDONDisease-causing germline mutation(s)
CRIPTODisease-causing germline mutation(s)
DISP1Disease-causing germline mutation(s)
DLL1Disease-causing germline mutation(s)
FGF8Disease-causing germline mutation(s)
FOXH1Disease-causing germline mutation(s)
GAS1Disease-causing germline mutation(s)
GLI2Disease-causing germline mutation(s)
NODALDisease-causing germline mutation(s)
PTCH1Disease-causing germline mutation(s)
SHHDisease-causing germline mutation(s)
SIX3Disease-causing germline mutation(s)
STILDisease-causing germline mutation(s)
TGIF1Disease-causing germline mutation(s)
ZIC2Disease-causing germline mutation(s)

ICD-10 codes

Q04.2filed under a broader ICD-10 category — shared with 9 other rare diseases

ICD-10 has no distinct code for most rare diseases, so many are filed under the nearest available one. A shared code identifies the group, not this disease — the ORPHAcode above is what identifies it.

Related health topics

Reached through the ICD-10 categories this disease is filed under, so these describe the broader group rather than this disease specifically.

Cross-references

OMIM 157170OMIM 609637OMIM 610829UMLS C5679777

Orphadata Science: Free access data from Orphanet. © INSERM 1999. Data version 2026-06-23. Available under CC BY 4.0. This is a reference, not medical advice.

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